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In reply to the discussion: "But They Are Dying." Hospice physicians like me can't usually offer patients the care they need. - Slate [View all]Farmer-Rick
(12,677 posts)41. This matches my experience with my uncle
Hospice was totally useless. They came to my home said we would have to take him off dialysis which would cause extreme pain and kill him in 3 days. They wouldn't help with pain relief either. He had kidney failure.
So for the next year I took care of him. I rarely got a break even while he was in the hospital. There was one time in the ICU, where he was bleeding out after a medical procedure, due to blood thinners, and there weren't enough nurses available. I had my hands over his chest trying to put pressure on the wound while the 1 nurse in the ICU went off to get more supplies. I was covered in his blood.
The medical establishment can be really money hungry. And stupidly stuck on useless protocols.
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"But They Are Dying." Hospice physicians like me can't usually offer patients the care they need. - Slate [View all]
justaprogressive
Apr 2025
OP
That is bizarre - completely the opposite of my experience recently with hospice
whopis01
Apr 2025
#6
I am so sorry for him to have to put up with all that, and then pass. And your frustration. Your anger is justified.
Evolve Dammit
Apr 2025
#30
I hope I have the courage to take assisted end of life if I ever get in a terminal cancer or
3Hotdogs
Apr 2025
#4
I could not have survived my wife's cancer without the angels in hospice.
bluescribbler
Apr 2025
#17
My Grandpere spent the last month or so of his life in a hospice. It was a gift to us all...
TygrBright
Apr 2025
#29
I can't imagine how my experience with Hospice could have been any better than it was.
jackcrow2001
Apr 2025
#42
I took care of my husband at home. The hospice nurse came a few times to make sure everything was ok.
TommieMommy
Apr 2025
#51
I had no idea there was such drastic variation in the quality of hospice services!
ShazzieB
Apr 2025
#52