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maptap22

(263 posts)
53. I had a bad experience with hospice too when my husband was dying
Thu Apr 24, 2025, 06:09 AM
Apr 2025

I thought I was the only one. I had no idea what to expect and no one sat me down and told me. I was in shock so was not thinking clearly. The one and only time someone came to the house for his care, the woman did not bring anything with her. I was not aware that I needed to provide all the supplies for his care. And when they were bringing him home by ambulance they had me running around looking for an oxygen tank (the ambulance already had one). They sent him home without his meds so my son had to go back and pick them up. When he was at the hospice facility, I was assured a private room - nope did not happen.

And this is the big one - they had no morphine. The man was riddled with cancer and in pain and they had no morphine? They ended up putting him on dilated (sp?).

He died in a week or I would have sought out a different hospice.

Recommendations

1 members have recommended this reply (displayed in chronological order):

Kicking. n/t ChazII Apr 2025 #1
Hospice care is one of the greatest services possible GulfofMexico Apr 2025 #34
How sad the U.S. does not fund full hospice care. AloeVera Apr 2025 #2
It's even worse if you don't have any family support Random Boomer Apr 2025 #14
It shouldn't be that way. AloeVera Apr 2025 #20
That is the boat I am now in CountAllVotes Apr 2025 #49
hospice benefits CountAllVotes Apr 2025 #3
That is bizarre - completely the opposite of my experience recently with hospice whopis01 Apr 2025 #6
Our health care "system" sucks. That was one sad example and I am sorry 😞 Evolve Dammit Apr 2025 #9
And it is not the fault of doctors and nurses. Just to clarify Evolve Dammit Apr 2025 #11
it really sucks CountAllVotes Apr 2025 #23
I am so sorry for him to have to put up with all that, and then pass. And your frustration. Your anger is justified. Evolve Dammit Apr 2025 #30
You must have gotten hold of one of the few hospice folks with no empathy. lark Apr 2025 #10
It has ruined my life! CountAllVotes Apr 2025 #24
Must Rebl2 Apr 2025 #18
There was no "choice" CountAllVotes Apr 2025 #25
This matches my experience with my uncle Farmer-Rick Apr 2025 #41
Thanks for sharing CountAllVotes Apr 2025 #48
Oh, I feel ya EuterpeThelo Apr 2025 #44
Damn! CountAllVotes Apr 2025 #47
I had a bad experience with hospice too when my husband was dying maptap22 Apr 2025 #53
I hope I have the courage to take assisted end of life if I ever get in a terminal cancer or 3Hotdogs Apr 2025 #4
I lived through this with my Daddy. I miss him. ❤️ littlemissmartypants Apr 2025 #5
Hospice was wonderful LittleGirl Apr 2025 #7
Hospice care should seriously reduce suffering. Prairie_Seagull Apr 2025 #8
Great health care system. Just wonderful. Mr. Mustard 2023 Apr 2025 #12
I don't understand why people don't use MAID. Jacson6 Apr 2025 #13
Where do you live? Random Boomer Apr 2025 #15
This message was self-deleted by its author Ruby the Liberal Apr 2025 #36
Sorry - self deleted. Ruby the Liberal Apr 2025 #38
Never Rebl2 Apr 2025 #19
Medical Assistance In Dying. It used to be called assisted suicide. n/t Jacson6 Apr 2025 #21
There are only a handful of states that allow Death with Dignity Ruby the Liberal Apr 2025 #37
MAID is only available/authorized drmeow Apr 2025 #39
And republicans don't give a shit.......... joshdawg Apr 2025 #16
I could not have survived my wife's cancer without the angels in hospice. bluescribbler Apr 2025 #17
My Husband just died in Hospice in our home in Jan this year NCgayguy Apr 2025 #22
Oh, my heart EuterpeThelo Apr 2025 #45
Thank you for your reply. NCgayguy Apr 2025 #58
This message hit me like a thunderbolt... Moostache Apr 2025 #26
Big hug to you SARose Apr 2025 #32
we had a horrible experience with in patient hospice when my mom was dying. Native Apr 2025 #27
Mine was awful too CountAllVotes Apr 2025 #28
My Grandpere spent the last month or so of his life in a hospice. It was a gift to us all... TygrBright Apr 2025 #29
My Mother-In-Law passed in a hospice hospital SARose Apr 2025 #31
Tom apparently was lucky enough to get into a good facility. totodeinhere Apr 2025 #33
just hope to die painlessly in my sleep CountAllVotes Apr 2025 #50
The VA is a Federal Agency, but soldierant Apr 2025 #35
I want to die in Italy JustAnotherGen Apr 2025 #40
I can't imagine how my experience with Hospice could have been any better than it was. jackcrow2001 Apr 2025 #42
I'm so afraid of that time in my life Tickle Apr 2025 #43
God Bless You blueinredLa Apr 2025 #46
Welcome to DU LetMyPeopleVote Apr 2025 #56
I took care of my husband at home. The hospice nurse came a few times to make sure everything was ok. TommieMommy Apr 2025 #51
I had no idea there was such drastic variation in the quality of hospice services! ShazzieB Apr 2025 #52
In patient hospice even if it is good costs a fortune and is not fully covered if at all Meowmee Apr 2025 #54
If there is a trick to get the best care one can, Prairie_Seagull Apr 2025 #55
I bought my wife and sons copies of the book "That Good Night" as this is how I expect to die. NNadir Apr 2025 #57
Latest Discussions»General Discussion»"But They Are Dying." Hos...»Reply #53